National Data Opt-Out

The National Data Opt-out (NDOO) is a central registry of patients who do not want their medical information to be used by any organisations for research or future planning.

Patients have to register at Registration for opt out. This will ensure that their data is removed from any searches carried out centrally before patient data is shared to be used for research or planning purposes. 

Practices cannot add a National Data Opt-out for the patient, but they can code a patient’s request not to be included in any planning or research that the practice may carry out.  This is called a Type 1 opt out and prevents patient data from leaving the practice for anything other than their direct care.